Guestbook

Get in touch!You can leave your comments here and your messages to other survivors or visitors to the website. We’re interested to know what brought you to our website, how we can improve the site to provide better support and other ways we can help.

Or maybe you just want to say hello, that’s ok too.

We look forward to reading them. You can also get in touch on Facebook, Twitter or Google+ as well.

12 Comments

  1. nine years since diagnosis, six since CRC and HIPEC with Dr. Martin Goodman at Tufts in Boston. NED and enjoying life. A PMP Survivor !

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  2. Thanks, Terry, and congratulations on 9 years!

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  3. Great

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  4. Hi. It is now 10 years and 4 months since my big operation and thanks to Brendan and his wonderful care. I am able to enjoy life with my daughter and grandaughters in Hampshire. If I am able to help anybody with the same problem, I am happy to.

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    • Hi, Doreen, congratulations on reaching 10 years!! And thank you so much for your offer of help. Perhaps you would consider becoming one of our buddies.

      Angela

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    • Hi Doreen,

      Congratulations on your 10 years. I am currently struggling with my diagnosis and the future and would really appreciate any advice and support.

      Thank you
      Lucy

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    • Congrats, that’s amazing. I was diagnosed six months ago after a hysterectomy and was expecting to have the big op in Basingstoke in two weeks but just been told they just going to do an appendectomy as my scan, etc, looked good.

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      • Best wishes for your upcoming operation, Denise!

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  5. Hello ! I live in the north of Sweden in Umeå I an 61 . I had CRS and HIPEC six years ago at the Academic hospital in Uppsala . I had a great fortune to meet a fantastik surgeon – Haile Matheme. He and his team saved my life and I an greatful for every new day I can spend with my highly loved family. I have even been blessed with two grandchildren.

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  6. Hi all,
    I live in the US and have been a PMP survivor since 2002. Started a blog because I felt the need to give back somehow. I love seeing all the positive comments and success stories on your site! If anyone is interested, you can find my blog on https://cancertalk-patient2patient.com. I just set it up and I hope it works! Sorry about how long it is. My husband says I should break them up into smaller sections but I’m learning.

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  7. This is Linda again. I just did a blog on inpatient nutrition issues if anyone is interested you can find me at: http://cancertalk-patient2patient.blogspot.com. I hope it works as I am new to blogging.
    I live in the US and have a long standing history of PMP will multiple MOAS surgeries. I was diagnosed in 2002 while in my early 30’s. Prior to being a PMP survivor, I worked first as a Registered Dietitian in a hospital and then went on to go to become a Physician Assistant. Despite this, prior to my diagnoses, I had never heard of or treated anyone with PMP.
    I plan on trying to continue living until I’m 100 yo and think that as a group; PMP survivors can help facilitate the ultimate total cure by advocating for ourselves and by keeping up on new research. I started a blog as a way to ‘give back’ somehow. If anything I have to say can help someone else then it is all worth it. Thanks and here’s to living well despite PMP!!!

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    • Thank you for sharing your blog with us, Linda! It’s so great that you want to give something back to the PMP community. Perhaps you could write a post for our blog sometime?

      As survivors and caregivers, we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.

      Reply

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