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Keep in touch with what is going on by reading our Pseudomyxoma Survivor blog, including stories from survivors of PMP and appendix cancer. You can subscribe by email too.
After an elderly relative was admitted to hospital with gallstones and, after researching her symptoms online, I was convinced I had the same problem. I pestered my GP to refer me for an ultrasound which eventually showed I had no gallstones, but “a fair amount” of fluid around my liver.read more
Hopefully, going to the GP with some of the symptoms for PMP could result in earlier tests and lead to an earlier diagnosis for patients.read more
I knew that I didn’t have textbook appendicitis but does anyone really have “textbook appendicitis”?
I cried as I was driving home from my doctor’s appointment. Then I picked myself up when I got home and googled “low grade mucinous appendiceal neoplasm” because I needed to know everything about this new enemy. That’s when I found the term pseudomyxoma peritonei.read more
You’ve liked our Facebook page, followed us on Twitter, added us to your circles on Google+, subscribed to the blog and read the website (you haven’t? … well, that’s ok [sort of] — but hey, now is a good time to do so, right?).
But just what is Pseudomyxoma Survivor and who are the faces behind the name?read more
My prognosis isn’t good so for me it’s all about making memories and living my life to the full whilst I still can.read more
So much of what you read online about the disease focuses only on the severity of the illness, and this can be terrifying for patients. I think it’s really important that people with a PMP diagnosis are given positive messages – because the fact is, you can survive and indeed thrive after pseudomyxoma. Raising awareness of this fact is just as important as raising awareness of the disease itself, I reckon.read more
I was diagnosed with PMP aged 32, after many months of stomach pains, bloating, constipation and irregular periods. After numerous trips to my GP, which led to an ultrasound and eventually a CT scan, I was told I had a nine centimetre tumour on my appendix which had burst and leaked cancerous mucin into my abdominal cavity.read more
Putting on your happy face every day to those you love, trying not to worry them, has been exhausting
It is not in my nature to reveal all of the everyday trials and tribulations to every person I meet. I do believe that this has been the hardest thing I have ever done in my life, and to try and remain calm, cool and collected in the face of such an obstacle, has been exhausting, to say the least.read more
Kirsty was diagnosed with pseudomyxoma peritonei (PMP) and instead of dwelling on the condition, she and her friends organised a fundraising event.read more
I’ve always loved that Billy Joel tune, ‘We Didn’t Start The Fire’¹. As a music producer myself, for a long time I’d been thinking how cool it would be to record my own, adapted version of the song.
At the same time, in the two years since my MOAS² I’d been thinking about ways to raise awareness of PMP. I’d done a bit of fundraising myself here and there, but I really wanted to do something bigger. I wanted to do something collaborative to allow other survivors and supporters to get involved in a fun and positive way.read more
I was going through the content from the old website to make sure that I had brought it all across to this one and I stumbled across this post…read more
Last year, I pledged to do 30 Days of Biking. It’s a global challenge to ride your bike every day in April, any distance, any destination. For every 30 people to pledge, they donate a bicycle to a child in need.
I never got to fulfil my pledge.read more
A Bristol woman has made a full recovery after having nine of her organs removed. Jenny Ramage was told she would have died if she hadn’t undergone what doctors call the ‘mother of all surgeries’.read more
I decided to help raise money for Pseudomyxoma Survivor when I found out my friend Kirsty was diagnosed with pseudomyxoma peritonei (PMP). I was in shock that she had developed cancer. You never think it will happen to someone you know, especially when they are the same age as you.read more
Davina Knight stays positive in the face of one-in-a-million cancer diagnosis and she shared her story with The Morning Bulletin.read more
A Hampshire woman who contracted a rare form of cancer has undergone surgery which involved the removal of a number of her organs, before she was blasted with chemotherapy. Emily Ervine had a rare form of cancer – the same condition that killed, Hollywood star, Audrey Hepburn.read more
Melissa featured in her local newspaper after abseiling down from a bridge to raise awareness. How fantastic!read more
My operation meant that I would never experience the joy of carrying my own baby… I cried until there were no tears left.read more
My story began a few months after I got married. My first symptom was the sudden onset of intense pain while I was at work one day. After a few hours, the pain subsided but I decided to make an appointment with my family doctor a few days later.read more
Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.
As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.
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