Keep in touch with what is going on at Pseudomyxoma Survivor.

Keep in touch with what is going on by reading our Pseudomyxoma Survivor blog, including stories from survivors of PMP and appendix cancer. You can subscribe by email too.

How was the Peritoneal Tumour Service Patient day at the Christie hospital?

Well a bit later than planned, damned house move, I can update you all on the Peritoneal Tumour Service Patient day at the Christie hospital on September 21st, 2016. The event was really well attended, I’m constantly amazed that this community is much larger than I have ever realised and yet again I was able to meet some amazing people.

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Christmas Card Competition 2016 Winners

We are delighted to announce the results of our Christmas Card Competition 2016. Thank you for all entries and interest. Our winners are… Renee Bearden Williams in the adult category and Emiliana Lawrence in the junior category. I’m sure you’ll agree... read more

Liam Clarke – A Matter of Life and Death

Liam Clarke is a much-missed member of our PMP family and Kathy continues to support us even as she deals with her own loss. Susan and I had the privilege of meeting them both in Belfast last year and were both impressed then by the courage and grace with which he approached his illness.

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Welcoming Salena….

We are delighted to welcome Salena Begley onto the Board of Pseudomyxoma Survivor. Salena’s “day job” involves working for a large successful charity and she brings with her a wealth of experience in both fundraising and allocating grants.

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Serendipity! I love that word, it’s my favourite word, so if we are ever on Mr and Mrs together, you know my answer. It means “the occurrence of events by chance in a happy or beneficial way”. A chance meeting, orchestrated by a very special lady in Norfolk, has brought our two charities together.

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Christmas Card Competition

Calling all budding artists!

We’ve been discussing charity Christmas cards in our support group which got us thinking here at Survivor Towers. Better late than never, we announce our 2016 competition to design the artwork for our cards.

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I was diagnosed with PMP when I was 37; my son Aiden was 7 at the time. One of the hardest things I had to do was tell him about my diagnosis and tried to field many of the questions that he had. He’s an only child, so he had a lot of worries and anxieties – but... read more

My Olympic Victory

Four years ago, I had to give up my ticket to watch the London Olympics to go to a hospital appointment and be told I had PMP and had only ‘a few months’ if Basingstoke could not offer me CRS and HIPEC. Now I’m in Rio!

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Zoe’s raising awareness

Steve was diagnosed with pseudomyxoma peritonei after complaining of stomach pains. Now his wife, Zoe, is organising a charity auction at The Royal Hotel, Mundesley in Norfolk.

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PMP Community Webinar

If you were unable to join us for the first PMP Community webinar with our friends at RareConnect, the video is now available to watch. You can also download the presentation slides.

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PMP Awareness Month

“Let’s pick one. Pick a month, any month.” I said.

“Can we do that?” Dawn asked. “Can we just pick one?”

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Susan’s Cancer Voices Book Reviews

As part of my commitment to raising awareness of PMP, I am also a Macmillan Cancer Voice. Cancer Voices are people from across the UK who share their experiences to help shape cancer services and improve cancer care. I’ve been to a few meetings in the past and more recently I have been reviewing books for them.

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Sad News

We’re are very sad to share with you the news of the passing of Dawn Green, the founder of Pseudomyxoma Survivor. Dawn was first diagnosed with Pseudomyxoma Peritonei when aged just 30 years old and given three months to live. Never one to give in and take something... read more

Changes are afoot…

Following a decline in her health, we share the sad news that Dawn Green, the founder of Pseudomyxoma Survivor, has decided to step down from her role as trustee of the charity to focus on her own well-being and spend more time with family and friends. Dawn was first... read more

Andrew’s Coast to Coast Walk

Andrew starts his mammoth walk today – starting today at St Bees on the west coast and finishing on Saturday next week at Robin Hood Bay on the east coast.

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World Cancer Day

February 4th marks World Cancer Day, the one day in the year when the world comes together to raise awareness of cancer and also to encourage its prevention, detection and treatment. With the ‘Cancer Moonshot’ in the US and new tests and treatments... read more

Being sick

The last year and a half has been a profound and unmooring experience, and one I turn over in my mind with gratitude, disbelief, and amazement.

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Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.

As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.

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