Keep in touch with what is going on at Pseudomyxoma Survivor.
Keep in touch with what is going on by reading our Pseudomyxoma Survivor blog, including stories from survivors of PMP and appendix cancer. You can subscribe by email too.
As part of my commitment to raising awareness of PMP, I am also a Macmillan Cancer Voice. Cancer Voices are people from across the UK who share their experiences to help shape cancer services and improve cancer care. I’ve been to a few meetings in the past and more recently I have been reviewing books for them.read more
On 20th April, Susie went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers.read more
Andrew starts his mammoth walk today – starting today at St Bees on the west coast and finishing on Saturday next week at Robin Hood Bay on the east coast.read more
This was the hardest thing I ever made, but it was more than worth it. I don’t want other families to have to deal with this.read more
The last year and a half has been a profound and unmooring experience, and one I turn over in my mind with gratitude, disbelief, and amazement.read more
It’s tough being only 20 years old and a cancer patient at that. Mainly because no one expects or even wants to believe you could even end up developing cancer, and the worst culprits are medical professionals. True, the odds are so low it’s a waste of time to even bother, but that ‘waste of time’ could have cost me my life!read more
James and I know that our lives will never be what we once planned. Not being able to have children is still very hard for us to come to terms with but we know that it was necessary to improve my chance of long-term survival. We take each day as it comes and are thankful for the life that we are given the chance to live, not taking anything for granted.read more
It’s going to be a tough call as we have had so many amazing events and fundraisers this year so we need your help.read more
On February 2nd, 2011, my appendix burst and I had an operation in Burton-on-Trent. I was 36. On March 7th, I received a letter from the hospital saying I’d missed a follow-up appointment for a suspected case of PMP. I hadn’t received the original letter and just what was PMP? I looked it up on the internet.read more
A few weeks ago, I was privileged to be able to attend the James Bond 007 Ball organised in support of Pseudomyxoma Survivor. I’d like to say ‘thank you’ to the organisation committee for inviting me and for arranging the ball. The room looked fantastic — the theme even extended to bullet holes in the toilet doors!read more
When Nicki’s friend was diagnosed with pseudomyxoma peritonei (PMP), Nicki decided she would show her support by raising awareness and some funds for the charity at the same time. She came up with a plan that is visible and also supported another charity as well as Pseudomyxoma Survivor.read more
After an elderly relative was admitted to hospital with gallstones and, after researching her symptoms online, I was convinced I had the same problem. I pestered my GP to refer me for an ultrasound which eventually showed I had no gallstones, but “a fair amount” of fluid around my liver.read more
Hopefully, going to the GP with some of the symptoms for PMP could result in earlier tests and lead to an earlier diagnosis for patients.read more
I knew that I didn’t have textbook appendicitis but does anyone really have “textbook appendicitis”?
I cried as I was driving home from my doctor’s appointment. Then I picked myself up when I got home and googled “low grade mucinous appendiceal neoplasm” because I needed to know everything about this new enemy. That’s when I found the term pseudomyxoma peritonei.read more
You’ve liked our Facebook page, followed us on Twitter, added us to your circles on Google+, subscribed to the blog and read the website (you haven’t? … well, that’s ok [sort of] — but hey, now is a good time to do so, right?).
But just what is Pseudomyxoma Survivor and who are the faces behind the name?read more
My prognosis isn’t good so for me it’s all about making memories and living my life to the full whilst I still can.read more
So much of what you read online about the disease focuses only on the severity of the illness, and this can be terrifying for patients. I think it’s really important that people with a PMP diagnosis are given positive messages – because the fact is, you can survive and indeed thrive after pseudomyxoma. Raising awareness of this fact is just as important as raising awareness of the disease itself, I reckon.read more
Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.
As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.
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