I live in the UK and I was first diagnosed with pseudomyxoma peritonei (PMP) in February 2008 after about 15 months of misdiagnosis. I was originally given just 3 months to live.
After doing my own research on the internet, I found that there are treatment options available on the NHS. As pseudomyxoma peritonei is very rare, there are just two named specialist treatment centres in the UK, being the Basingstoke and North Hampshire NHS Foundation Trust and the Christie Hospital in Manchester.
I later had my first 12 hour operation by Mr Brendan Moran and his team at Basingstoke in June 2008. Unfortunately the cancer returned and I had a further 11 hour operation in June 2009, followed by 6 months of IV chemotherapy. I returned to Basingstoke again for a 6 hour operation, followed by HIPEC, in May 2012.
Following my experiences and noticing a distinct lack of patient lead information and support, I became the Founder and Chief Executive Officer of this charity, Pseudomyxoma Survivor. I have achieved both national and global recognition for my patient advocacy and awareness raising efforts and has been guest speaker at several conferences, both in the UK and overseas.