Meet our inspiring PMP survivors
Courage in the face of cancer and of treatment is a common thread running through all our stories, even though they’re all very different. Read how appendix cancer and pseudomyxoma survivors have fought through stormy times and misdiagnoses, and yet somehow found an inner strength.
My original symptom was an ‘irritated‘ bladder — it is difficult to describe but the closest I can come up with it that it felt like it was vibrating all the time. In March 2010, after several months of bladder discomfort and many trips to my GP, I was referred to the gynae-urinary clinic at my local University hospital with suspected bladder prolapse.read more
Fay had her operation at the Christie Hospital in Manchester when she was just 28. She has been diagnosed with PMP. She shares her story.read more
I feel great. I was worried about catching colds and things without my spleen but I’m as healthy as I was before. My son and husband have caught colds but I have not which is normal for us. I have caught a sickness bug from my son since surgery but I recovered quickly with no problems and again compared to what I’ve been through, it felt like nothing.read more
Mark’s story starts with a stomach bug that was part of a series of episodes leading up to his diagnosis.read more
Maureen is the married mother of grown children and enjoys spending time with her husband and family! She celebrates more than five years of showing no evidence of disease and shares her experiences, as well as suggestions for healthy living!read more
Jo was on holiday in Thailand when she noticed that it hurt when she laughed.read more
When my doctor told me what he had discovered during surgery for a suspected ovarian tumour, I could barely pronounce the words let alone understand what it might mean for me.read more
The most common question I get asked is “How did you know something was wrong?”. So, here’s the story.read more
At the time of my CRS cytoreductive surgery (HIPEC was not needed in my case) four years ago, my three children were ages 17, 18 and 23.
My 23-year old daughter had just left for a mission’s trip to Africa the day I was diagnosed. My 18-year old son was in his first year of college and was not living at home. My 17-year old daughter was a senior in high school.read more
Nikkie’s story starts with an abnormal smear test.read more
Rod tells us that PMP isn’t always the immediate death sentence some expect — with top quality surgery it can be overcome, with a decent life expectancy afterwards.read more
Two years after my initial surgery, I underwent a second laparotomy and had an ulcer repaired. I was hospitalized for five days then sent home to recover. Six weeks later, I was back at work full time.
I had a third laparatomy four years after my initial one and lost part of my stomach and my gallbladder. They sculpted me a new belly button which I thought was kind of nice — but not as cute as my original.read more
I was diagnosed with disseminated peritoneal adenomucinosis, For me, this disease was just a bump in the road. At the time, it was a huge bump. Now, it seems like a memorable bump but one that just slowed me down for a few months.read more
I was working as a daybaker and would come home and fall asleep on the sofa soon after I got home. I was exhausted and, despite exercising regularly and watching what I was eating, my waist kept expanding over a period of seven months.read more
Cancer is a jolt to any family’s whose loved one has been diagnosed with it. When one member of the family has cancer, it’s as if the entire family has cancer.read more
For many years prior to cancer I had thought about being in a triathlon – it would be a real physical accomplishment! What a way to impress my friends! Just the word triathlon invokes a sense of awe.read more
Ekaterina had her appendix and a tumour removed in 2007.read more
Kay’s PMP was discovered during a proctocolectomy.read more
Trish felt something was wrong but she couldn’t pin down the feeling.read more
Lauren was diagnosed with PMP following her 20-week prenatal ultrasound.read more
Shelly felt something wasn’t right in her abdomen.read more
Dawn lives in the UK and was first diagnosed with pseudomyxoma peritonei (PMP) in February 2008 after about 15 months of misdiagnosis.read more
Dawn was diagnosed in 2010 and underwent surgery in January 2011.read more
Ruth was ignored by her GP until she asked to be referred to a gynaecologist.read more
After having pains in his side, Bob was found to have gallstones.read more
How do Appendix Cancer patients prepare for surgery? Some, like Chris, incorporate fitness training, into their pre op plans, to optimize their post op recuperation.read more
We'd love to read your story
Many people find it helps to talk about their experiences. This can be helpful for others who are going through the same. We always respect your privacy — there is no expectation for you to provide a story to fully participate in our support groups or buddy scheme nor to publicly share personal details such as your name or a photograph. We are happy to support however much, or how little, you want to share with others.
If you would like to share your story with us and with other survivors, we’d love you to get in touch with us!