Meet our inspiring PMP survivors
Courage in the face of cancer and of treatment is a common thread running through all our stories, even though they’re all very different. Read how appendix cancer and pseudomyxoma survivors have fought through stormy times and misdiagnoses, and yet somehow found an inner strength.
I wasn’t diagnosed until I had emergency surgery on August 8, 2013. I became ill on the August 6th, luckily my gynaecologist was on call and sent me to a gynae-cancer specialist who has actually seen appendiceal cancer three times before that, so he knew what to look for and do. I had a six-hour operation and four rounds of chemotherapy.
It is not in my nature to reveal all of the everyday trials and tribulations to every person I meet. I do believe that this has been the hardest thing I have ever done in my life, and to try and remain calm, cool and collected in the face of such an obstacle, has been exhausting, to say the least.
My story began a few months after I got married. My first symptom was the sudden onset of intense pain while I was at work one day. After a few hours, the pain subsided but I decided to make an appointment with my family doctor a few days later.read more
My doctor said I have a 72% chance of being alive in 10 years; those are great odds for a cancer patient. One of my doctors guessed that I might have had six months without treatment. I’m happy that I was a candidate for surgery and HIPEC. Without it, I’d probably be dead right now.read more
My original symptom was an ‘irritated‘ bladder — it is difficult to describe but the closest I can come up with it that it felt like it was vibrating all the time. In March 2010, after several months of bladder discomfort and many trips to my GP, I was referred to the gynae-urinary clinic at my local University hospital with suspected bladder prolapse.read more
Fay had her operation at the Christie Hospital in Manchester when she was just 28. She has been diagnosed with PMP. She shares her story.read more
I feel great. I was worried about catching colds and things without my spleen but I’m as healthy as I was before. My son and husband have caught colds but I have not which is normal for us. I have caught a sickness bug from my son since surgery but I recovered quickly with no problems and again compared to what I’ve been through, it felt like nothing.read more
Mark’s story starts with a stomach bug that was part of a series of episodes leading up to his diagnosis.read more
Jo was on holiday in Thailand when she noticed that it hurt when she laughed.read more
When my doctor told me what he had discovered during surgery for a suspected ovarian tumour, I could barely pronounce the words let alone understand what it might mean for me.read more
The most common question I get asked is “How did you know something was wrong?”. So, here’s the story.read more
For well over a year, I noticed my belly steadily getting bigger though I didn’t seem to be eating any more than normal. I of course tried dieting a few times but when I didn’t lose weight I gave up pretty quickly!read more
Nikkie’s story starts with an abnormal smear test.read more
Rod tells us that PMP isn’t always the immediate death sentence some expect — with top quality surgery it can be overcome, with a decent life expectancy afterwards.read more
Two years after my initial surgery, I underwent a second laparotomy and had an ulcer repaired. I was hospitalized for five days then sent home to recover. Six weeks later, I was back at work full time.
I had a third laparatomy four years after my initial one and lost part of my stomach and my gallbladder. They sculpted me a new belly button which I thought was kind of nice — but not as cute as my original.read more
I was working as a daybaker and would come home and fall asleep on the sofa soon after I got home. I was exhausted and, despite exercising regularly and watching what I was eating, my waist kept expanding over a period of seven months.read more
Ekaterina had her appendix and a tumour removed in 2007.read more
Kay’s PMP was discovered during a proctocolectomy.read more
Trish felt something was wrong but she couldn’t pin down the feeling.read more
Lauren was diagnosed with PMP following her 20-week prenatal ultrasound.read more
Shelly felt something wasn’t right in her abdomen.read more
I live in the UK and was first diagnosed with pseudomyxoma peritonei (PMP) in February 2008 after about 15 months of misdiagnosis.
After doing my own research on the internet, I found that there are treatment options available on the NHS. As pseudomyxoma peritonei is very rare, there are just two named specialist treatment centres in the UK, being the Basingstoke and North Hampshire NHS Foundation Trust and the Christie Hospital in Manchester.read more
Dawn was diagnosed in 2010 and underwent surgery in January 2011.read more
Ruth was ignored by her GP until she asked to be referred to a gynaecologist.read more
After having pains in his side, Bob was found to have gallstones.read more
We'd love to read your story
Many people find it helps to talk about their experiences. This can be helpful for others who are going through the same. We always respect your privacy — there is no expectation for you to provide a story to fully participate in our support groups or buddy scheme nor to publicly share personal details such as your name or a photograph. We are happy to support however much, or how little, you want to share with others.
If you would like to share your story with us and with other survivors, we’d love you to get in touch with us!