Blog

Dawn Green was invited to officially open this year's Cancer Research UK Relay for Life event in East Kilbride on Friday 22nd June 2012 where she met with some absolutley wonderful and inspirational cancer survivors.

The aim of getting involved in this event was also to take the opportunity to further educate people about Pseudomyxoma Peritonei but, unfortunately, Mother Nature had other plans and the relay was abandoned due to bad weather before Dawn had the opportunity to share her story. Thankfully, she has been invited to attend next year to try again!

Pseudomyxoma Survivor is supporting this year’s Carers Week (18-24 June). Carers Week highlights the vital contribution made by carers to their families and communities in providing unpaid care for someone who is ill, frail or disabled. This year, the theme for the week is ‘In Sickness and in Health". It calls for greater support for unpaid carers to help them continue in their caring role without facing ill health, stress or financial worry.

This year’s Carers Week is supported by many famous celebrities with caring experience, including TV presenter and former carer, Fiona Phillips.

She says: “From personal experience, I know caring can demand a lot of your time and attention, which in some cases can put pressure on other areas in your life such as financial responsibilities and relationships. These problems can prove to be exhausting and mentally gruelling and can really take its toll on your health and wellbeing. I hope that Carers Week can again help to achieve change, and make a real difference to the lives of carers in this country.”

Other celebrities supporting this campaign include Dame Judi Dench, Lynda Bellingham and Dr Rob Hicks.

Carers Week is organised by a partnership of eight national charities: Age UK, Carers Trust, Carers UK, Independent Age, Macmillan Cancer Support, Marie Curie Cancer Care, MS Society and Parkinson’s UK.

For more information about the events and activities taking place as part of Carers Week, visit www.carersweek.org.

We were extremely fortunate to have a scholarship placement offered to us to attend this years EURODIS summer school held in Barcelona.

It aims at training rare disease patients' representatives in the areas of :

• Clinical trials,
• Drug development
• Regulatory affairs.

We are thrilled to be sending one of our young voluteers Catherine Burgess to the 4 day summer school between 17th and 21st of June 2012 to learn and to represent Pseudomyxoma Survivor at this prestigeous event.

Today marks the start of an epic journey for Mike and Sue who are climbing Mount Kilimanjaro to raise funds for Pseudomyxoma Survivor.  As close friends of Pseudomyxoma Survivor founder and CEO, Dawn Green, Mike and Sue wanted to find a way to support the charity.  They chose this in particular as they feel it is a huge challenge that matches the challenges faced by all patients following a diagnosis of PMP.

If you would like to show your support for Mike and Sue, please visit their JustGiving page and make a donation.