I was diagnosed with PMP when I was 37; my son Aiden was 7 at the time. One of the hardest things I had to do was tell him about my diagnosis and tried to field many of the questions that he had. He’s an only child, so he had a lot of worries and anxieties – but...

My Olympic Victory

Four years ago, I had to give up my ticket to watch the London Olympics to go to a hospital appointment and be told I had PMP and had only ‘a few months’ if Basingstoke could not offer me CRS and HIPEC. Now I’m in Rio!

Zoe’s raising awareness

Steve was diagnosed with pseudomyxoma peritonei after complaining of stomach pains. Now his wife, Zoe, is organising a charity auction at The Royal Hotel, Mundesley in Norfolk.

PMP Community Webinar

If you were unable to join us for the first PMP Community webinar with our friends at RareConnect, the video is now available to watch. You can also download the presentation slides.

PMP Awareness Month

“Let’s pick one. Pick a month, any month.” I said.

“Can we do that?” Dawn asked. “Can we just pick one?”

Susan’s Cancer Voices Book Reviews

As part of my commitment to raising awareness of PMP, I am also a Macmillan Cancer Voice. Cancer Voices are people from across the UK who share their experiences to help shape cancer services and improve cancer care. I’ve been to a few meetings in the past and more recently I have been reviewing books for them.

Sad News

We’re are very sad to share with you the news of the passing of Dawn Green, the founder of Pseudomyxoma Survivor. Dawn was first diagnosed with Pseudomyxoma Peritonei when aged just 30 years old and given three months to live. Never one to give in and take something...

Changes are afoot…

Following a decline in her health, we share the sad news that Dawn Green, the founder of Pseudomyxoma Survivor, has decided to step down from her role as trustee of the charity to focus on her own well-being and spend more time with family and friends. Dawn was first...