Don’t give up hope!

On February 2nd, 2011, my appendix burst and I had an operation in Burton-on-Trent. I was 36. On March 7th, I received a letter from the hospital saying I’d missed a follow-up appointment for a suspected case of PMP. I hadn’t received the original letter and just what was PMP? I looked it up on the internet.

A huge thank you!

A few weeks ago, I was privileged to be able to attend the James Bond 007 Ball organised in support of Pseudomyxoma Survivor. I’d like to say ‘thank you’ to the organisation committee for inviting me and for arranging the ball. The room looked fantastic — the theme even extended to bullet holes in the toilet doors!

Supporting a friend

When Nicki’s friend was diagnosed with pseudomyxoma peritonei (PMP), Nicki decided she would show her support by raising awareness and some funds for the charity at the same time. She came up with a plan that is visible and also supported another charity as well as Pseudomyxoma Survivor.

I was convinced I had gallstones

After an elderly relative was admitted to hospital with gallstones and, after researching her symptoms online, I was convinced I had the same problem. I pestered my GP to refer me for an ultrasound which eventually showed I had no gallstones, but “a fair amount” of fluid around my liver.

Just who are we?

You’ve liked our Facebook page, followed us on Twitter, added us to your circles on Google+, subscribed to the blog and read the website (you haven’t? … well, that’s ok [sort of] — but hey, now is a good time to do so, right?).

But just what is Pseudomyxoma Survivor and who are the faces behind the name?

Why I made an animation about pseudomyxoma peritonei (PMP)

So much of what you read online about the disease focuses only on the severity of the illness, and this can be terrifying for patients. I think it’s really important that people with a PMP diagnosis are given positive messages – because the fact is, you can survive and indeed thrive after pseudomyxoma. Raising awareness of this fact is just as important as raising awareness of the disease itself, I reckon.

We like holidays too so it might take us a little longer than usual to get back to you. Please be patient with us.