I used to lie in bed with this constant nagging pain where my appendix was

When I was 14, I used to lie in bed with this constant nagging pain where my appendix was. Every night, I was convinced that this would be the night it would explode, but it never did. Roll on 25 years and innumerable investigations and potions for IBS, haemorrhoids etc, etc. Nothing ever changed this pain. So I ignored it and got on with life, which largely revolved around being a highly stressed staff nurse and lots of body-damaging fitness (ultra-marathons etc).

Salena is honoured in the New Year List

it really is an honour to be included in the New Year’s Honours List having been awarded an MBE and as such Amanda, Angela, Lyn and Susan would like you to join us in congratulating Salena in having been awarded and MBE for her services to children’s welfare.

Merry Christmas!

It’s been a very long year for the team at Pseudomyxoma Survivor Towers. We’ve seen lots of new members join the support groups and we’ve lost some very special members too. The same applies to our team, we’ve extended the board of trustees (watch out for our newsletter to introduce you to Salena, our newest trustee), experienced the sad loss of our founder and gained some valued volunteers as well. We’ve had ill health to battle and personal issues to deal with along with the usual anxiety experienced with blood tests and scans.

My husband was told to go home and take acetaminophen

In April 2016, my husband, Donald, was suffering from bad night sweats and severe belly pain along with a fever. He went to the doctor in April 2016 and was told to take some acetaminophen (paracetamol) and go home. Less than two weeks later, it was so bad that Donald went to the Emergency Room.

Take part in Powdered & Waisted’s Draw

Debi from “Powdered and Waisted” has made this very special corset for a special reason and it could be yours! It’s difficult for us to try and explain how much work has gone into a piece like this. It’s all hand made and the process to make the ‘dragon scales’ is very detailed, it’s been an education for us to be a part of this corset being crafted.

I stayed in hospital for just two weeks

I had full cytoreductive surgery with HIPEC given. I stayed in hospital for just two weeks. I have recovered slowly although well. My main problem I have been left with is far from normal bowel movements. I now only have my annual CT scan.

How was the Peritoneal Tumour Service Patient day at the Christie hospital?

Well a bit later than planned, damned house move, I can update you all on the Peritoneal Tumour Service Patient day at the Christie hospital on September 21st, 2016. The event was really well attended, I’m constantly amazed that this community is much larger than I have ever realised and yet again I was able to meet some amazing people.

Christmas Card Competition 2016 Winners

We are delighted to announce the results of our Christmas Card Competition 2016. Thank you for all entries and interest. Our winners are…
Renee Bearden Williams in the adult category and Emiliana Lawrence in the junior category.

Liam Clarke – A Matter of Life and Death

Liam Clarke is a much-missed member of our PMP family and Kathy continues to support us even as she deals with her own loss. Susan and I had the privilege of meeting them both in Belfast last year and were both impressed then by the courage and grace with which he approached his illness.