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Keep in touch with what is going on at Pseudomyxoma Survivor.  If you have something you wish to share, please do not hesitate to contact us.

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Posted on 11:21am Friday 28th Sep 2012

There is now just one week to go until the new and improved online Big Give Quiz at 7:30pm on Wednesday 3rd October!

Support Pseudomyxoma Survivor at the Big Give QuizThe Big Give Quiz is online so you can join in the fun with a group of friends and family from the comfort of your own home, and all whilst raising money for Pseudomyxoma Survivor! To get involved, each team will pay a £10 registration fee to the Big Give and a £10 participation fee for each team member. Each team member will then receive a £10 donation voucher to donate to any charity of their choice on the Big Give – meaning that 100% of each member’s participation fee will go directly to the charity of their choice.

The quiz will be fun and interactive with a range of different rounds including 'Spot the Difference', 'Which Came First?', other picture rounds and, of course, some more traditional general knowledge questions. There are also fantastic prizes up for grabs! The Big Give are giving away £250 cash to the winning team, and £250 for the charity of their choice on the Big Give. Register today by clicking here.

Good luck on the night!

Posted on 7:02am Saturday 15th Sep 2012

Sarah shares why she is raising moneey for Pseudomyxoma SurvivorOn 30th September I am joining the Womens 40k Cycletta around Plumpton near Brighton to raise money for Pseudomyxoma Survivor.

My mum has suffered from Pseudomyxoma Peritonei for a long time. This type of cancer is incredibly rare and it took many years for a correct diagnosis. Thankfully, due to the incredible team at the Pseudomyxoma Unit in Basingstoke and Northants Hospital, she has now undergone major surgery and has successfully had the tumours removed. The operation process itself and recovery is an absolutely huge ordeal to go through. The money I raise will help in supporting others who are facing this surgery and their families, plus fund research in the UK which will hopefully result in quicker diagnosis in the future for others.

I'm relatively new to cycling (having been given a new bike by my lovely husband for my Birthday recently). So far I have managed about 25k in one outing. I'm not the fastest cyclist to say the least and at my current level would estimate 2.5 hours for the 40k - as long as there aren't too many hills! However, I'm hoping to pick up a bit of stamina and speed to do the 40k in as near to two hours as I possibly can.

If you would like to sponsor me, please visit my JustGiving page - http://www.justgiving.com/Sarah-Otley.

- Sarah

Posted on 12:51pm Friday 14th Sep 2012
Listed under: Coping with PMP

Whilst Steve from our support group was recovering from his operation in Basingstoke, he put together this poem about his journey so far:

Steve from our support group shared this poem about his experiences with Pseudomyxoma PeritoneiNauseous, cramps, and no appetite,
Restless, fatigued, but can't sleep at night.
Doctors, nurses, booking appointments,
Clinics, hospitals, waiting in out-patients.

It's a brand new day, the pain's the same.

Examinations, ultrasound, and MRI,
Nil by mouth, and drinks with dye,
Diagnosed, confused, I'm told it's rare,
Another consultant, we can't treat you here

It's a brand new day, the pain's the same

Surgery, hipec, and itc,
Drips and iv tubes for all to see,
Aftercare, physio, and annual scan
Faced it full on fought like a man.

It's a brand new day, the pain's no more.Steve from our support group shared this poem about his experiences with Pseudomyxoma Peritonei

- Steve

That just about sums it up for so many of us - facing it full on and coming out the other side.  Thank you, Steve, for sharing it with us.

Posted on 6:36am Friday 7th Sep 2012
Listed under:

quoteopenAnyone who does not believe in miracles is not a realist.quoteclose

 

 

― Audrey Hepburn

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Giving support to survivors and raising awareness of PMP worldwide
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